July 19, 2012
Fundraiser to help sick Homer child
Seneca Lake winery having barbecue Saturday to benefit 10-year-old with epilepsy
Photo provided by Meredith Boss
Meredith Boss, center, sits with her two children, Caelynn and Nicholas. Nicholas has two severe forms of epilepsy, a neurological condition that causes repeated seizures.
HOMER — The last few years have not been easy for Meredith Boss.
Her 10-year-old son, Nicholas, has two complex and severe forms of epilepsy, a neurological condition that causes repeated seizures.
Recently his language skills and IQ have declined to the point where he can no longer call his mother “mom” or “mommy” and instead calls her “Ya.”
Boss, a 30-year-old single mother, takes everything in stride. She says caring for Nicholas is the greatest joy and responsibility of her life.
“There are times when it’s tough,” Boss said. “But my family and I have been strong. I was always raised that children with special needs were a gift from God and that their parents were blessed. Nicholas is my blessing and having him is a gift.”
On Saturday, Monello Winery on Seneca Lake is hosting a barbecue fundraiser from noon to 10 p.m. for Nicholas and another child.
The goal is to help the families of the two children pay for medical care and other expenses related to their children.
Tickets are available in advance and at the door. People interested in attending can call the winery for tickets at 315-719-8924.
The owner of the winery, Grace Mirchandani, met Boss and her son at Strong Memorial Hospital in Rochester a few weeks ago. Mirchandani walked through the corridors of the hospital with a starfish balloon and caught a glimpse of Nicholas.
He beamed when he saw the balloon and Mirchandani knew immediately that it was meant for him.
“I was stolen at that moment,” Mirchandani said. “His face just lit up.”
Mirchandani sees the event as the beginning of a long relationship with Boss and her son. She wants to help them any way she can.
Proceeds from the fundraiser will also help Frederick “Freddie” Teribury, a 3-year-old from Gillett, Pa., who was recently diagnosed with leukemia. Mirchandani met Teribury at the hospital, as well.
“I really want to stay in their lives and see them through,” Mirchandani said. “The goal of this weekend is to kick start a relationship with these two families and be with them throughout their journey.”
Donations can be made directly to Monello Winery, 701 Route 14, Penn Yan, N.Y. 14527.
Boss said she is glad to have a new friend and another person to help her support her son. She credited her parents, Bob and Mary Jane Boss, also of Homer, and her 6-year-old daughter, Caelynn, with helping her with Nicholas.
“If it wasn’t for them, I don’t know what I would do,” she says.
As challenging as taking care of Nicholas can be, Boss said she is grateful for the lessons her son is teaching her.
Boss is taking classes at the Crouse Hospital School of Nursing to become a nurse.
She said her experiences with her son taught her the importance of having good caretakers and medical help.
“Nicholas was my inspiration to go back to school,” she said. “He makes my heart melt.”
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